Jennica's Journey
Facts about Cystic Fibrosis
Our Mission
Jennica's Journey
Upcoming Events
CF is not contagiuos
CF does not affect the brain, nervous system, or the capacity to learn
CF does not have a cure
Close to 1,000 children are born with CF yearly in the US
Every child with CF got genes for this disease from both parents
About 1 in every 400 marriages involves two carriers
CF does not affect the brain, nervous system, or the capacity to learn
CF does not have a cure
Close to 1,000 children are born with CF yearly in the US
Every child with CF got genes for this disease from both parents
About 1 in every 400 marriages involves two carriers
We are raising money to help fund research for the Cystic Fibrosis Foundation and to help with Jennica's medical bills.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and an accredited charity of the Better Business Bureau's Wise Giving Alliance.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and an accredited charity of the Better Business Bureau's Wise Giving Alliance.
Your participation in any or all of our fundraising efforts is greatly appreciated. We have been fortunate to have such a great community to support us.
If you are looking to donate and help in the efforts to find a cure, they can be made directly to the Cystic Fibrosis Foundation by visiting our web page http://greatstrides.cff.org under team Jennica's Journey.
If you are looking to donate and help in the efforts to find a cure, they can be made directly to the Cystic Fibrosis Foundation by visiting our web page http://greatstrides.cff.org under team Jennica's Journey.
* Great Strides 2012 Sioux Falls - Spencer Park
Date: June 2, 2012 Time: 09:00 AM
Register at http://greatstrides.cff.org under team Jennica's Journey
* Jennica's Journey 5k Fun Run/Walk Luverne Fairgrounds
Date: July 28, 2012 Time: 08:30 AM
Register at www.allsportcentral.com or by email at jarpshlager@yahoo.com
Date: June 2, 2012 Time: 09:00 AM
Register at http://greatstrides.cff.org under team Jennica's Journey
* Jennica's Journey 5k Fun Run/Walk Luverne Fairgrounds
Date: July 28, 2012 Time: 08:30 AM
Register at www.allsportcentral.com or by email at jarpshlager@yahoo.com
Jennica was born March 27, 2010. Within 24 hours she was taken to the Neonatal Intensive Care Unit. Her abdomin was distended and she had not passed any stools. After a colon biopsy, and many tests, we learned she has Cystic Fibrosis (CF). Cystic Fibrosis is a life threatening genetic disease that mainly affects the lungs and pancreas causing problems with breathing and digestion. The exocrine glands produce a thick mucus that can plug ducts and other passageways causing problems.
Jennica's daily regimen consists of twice daily nebulizer breathing treatments followed by 30 minutes worth of compressions on 10 areas of her chest and back. Her medication consists of pancreatic enzymes before each meal and an acid reflux medication. She also needs an extra intake of salt and fat soluble vitamins. Her diet is a high calorie and high protien diet.
Genetics of Cystic Fibrosis
People who carry one altered CF gene have no CF symptoms. Having one normal gene and one CF gene, the normal gene will dominate and the altered CF gene will be recessive. Having a child with CF means that each parent passed on the altered CF gene, therefore resulting in two CF genes.
About 1 in 31 Americans is a symptomless carrier of the CF gene.
Jennica's daily regimen consists of twice daily nebulizer breathing treatments followed by 30 minutes worth of compressions on 10 areas of her chest and back. Her medication consists of pancreatic enzymes before each meal and an acid reflux medication. She also needs an extra intake of salt and fat soluble vitamins. Her diet is a high calorie and high protien diet.
Genetics of Cystic Fibrosis
People who carry one altered CF gene have no CF symptoms. Having one normal gene and one CF gene, the normal gene will dominate and the altered CF gene will be recessive. Having a child with CF means that each parent passed on the altered CF gene, therefore resulting in two CF genes.
About 1 in 31 Americans is a symptomless carrier of the CF gene.
How You Can Help
Jennica's latest
Wed, 25th April, 2012
We are waiting for the clinic to call and schedule Jennica's bronchoscope. She has had a consistent cough for months. What was once thought to be Reactive Airway Disease, is now being re-evaluated. She will have the mucus flushed out of her lungs and then it will be tested to see what bacteria is growning. Her last 2 throat cultures have come back without growing anything, which we thought was good. But since she has this cough, they are thinking something is growing deep in her lungs. I will update you when we find out more! Thanks for your thoughts and prayers!
And on a happy note, Jennica gained 2 lbs at her last appointment! Yay! She was falling fast on her growth chart. We were in need of a growth spurt, and luckily we got one!
And on a happy note, Jennica gained 2 lbs at her last appointment! Yay! She was falling fast on her growth chart. We were in need of a growth spurt, and luckily we got one!
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